A few people have asked what our daily schedule here looks like, so since I have free time (lots of it!) I thought I would put it on the blog! This is what our schedule will be when we get home as well..
7:00am - Continuous night feeds shut off and Noah gets up
8:00am - Prevacid
8:30-9:15 - Morning session (breakfast) 15min of oral motor and chewing exercises, 30min of eating. (Goal - 2oz formula,.5-1oz of baby food w/oil and polycose)
9:15 - 10:15 - Playtime!
10:00 - Zantac
10:15-11:00 - 2nd morning session - 15 min of oral motor and chewing exercises, 30 min of eating.(Goal - 2oz formula,.5-1oz of baby food w/oil and polycose)
11ish - 12:45 - Breathing tx and nap time (or lack there of!) and lunch for me!
1:15 - 2:00 - 1st afternoon session (lunch) - 15 min of oral motor and chewing exercises, 30 min of eating.(Goal - 2oz formula,.5-1oz of baby food w/oil and polycose)
2:00 - 3:15 - playtime!
3:15 - 4:00 - Last afternoon session (snack) - 15 min of oral motor and chewing exercises, 30 min of eating
4:00 - 5ish - Free time
5ish - 6:00 - Dinner session w/me at hotel - 15 min oral motor and chewing, 30 min of eating.(Goal - 2oz formula,.5-1oz of baby food w/oil and polycose)
6:00 - 7:15 - Play, bath, breathing tx, Prevacid
7:15 - Bedtime and start continuous feeds
10:30 - Zantac
I know it seems like ALOT of time in the chair eating, but really this time is so laid back for him and he gets to play and watch movies for part of the time. He is constantly engaged and for the most part, happy during his sessions. The food and formula is offered about every minute, sometimes more frequent, depending on his tolerance. It is offered in rotation, bite, then drink, etc. They are encouraging us to keep our routine as consistant as possible when we get home. It takes him 30min to take 2oz of formula, so if we miss a session, he has to be bolused. The meds are strategically given throughout the day to try and keep his stomach as neutral as possible and the Prevacid especially, has to be given on an empty stomach. I have to check the residual in his stomach between each feed to determine the amount he can handle for the next one. 3oz total seems to be his limit at this time.
Hope this didn't bore you to tears! Have a great weekend!
PS. Sue, mom to Emily LCDH 1-22-08, feel free to email me so we can chat!