He is doing so much better with the g-j tube, it really is like night and day. He is sleeping better and so much happier during the day. He actually had the best dinner last night and ate more in one sitting than I have ever seen him eat. Right now he is getting 12 hours of continuous feeds through the j at night. I am not giving him anything during the day in terms of formula bolus. He may require an occasional water bolus through the g. Knock on wood, he has been doing really well with the sippy cup and drinking quite a bit of water, up to an average of 3oz a day. If he keeps that up we can keep things the way they are, if not we will supplement what he needs during the day.
Just in the past few days he has initiated standing by himself. He will pull to stand at the couch and then let go long enough to clap for himself and then get his grip again. He's so proud! He really seems to be gaining some confidence and I think his orthodics have been a big help!
Zane had his first basketball game yesterday and did great! They played two 40min games back to back full court! He was really tired but played so well! He went out deer hunting with Uncle Jeremy this afternoon for the first time. He was so excited I don't think he slept much this weekend. I will admit that I am a bit nervous about it but at least they are on private property and will be the only ones out there. I am sure he will have some stories when they get back!
Noah and I were home alone last night so I grabbed a little video of him including his awsome dinner! (Sorry that one is a little long) You might have to pause the music player first before you hit play in order to hear the sound on the videos.
4 comments:
WOW!!! What a great job Noah! I am so happy that the GJ is working out well for him. I absolutely love Noah's phone skills, they make me smile every time I see them! Amazing what a difference the GJ makes....
Rosie
He is developing some AWESOME skills! Go NOAH!! You must be SO proud of both your great boys!! Hope you have a wonderful week!
Blessings,
Laura
Thank goodness the surgery is producing positive results!! :) It's great to hear that he's been eating and drinking - everything is working in it's own time (even if it's not what we want!).
I'm telling you, the nutritionist told us to put weight on Xander by feeding him tablespoons of sliced stick butter and rolling it in brown sugar to add calories ;)
(Tastes like cookie dough!)
Have a great week!
18 months old already? Where does the time go? Glad the GJ is making Noah happier! Go Noah, go Noah...
Douglas family
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