They say that CDH occurs in 1 in about 2500 babies...with a statistic like this you would never think that someone you know would also be affected. A few weeks ago, our friends Greg and Leslie were told that their unborn baby boy had a diaphragmatic hernia. Leslie is due the middle of August and they also have a three year old little boy, Cole. The couple has been through their CDH workup (ultrasound, ECHO, and MRI) at both Riley and U of M and have chosen U of M to deliver. Their initial prenatal testing is coming back with very encouraging numbers so far, but as we all know CDH is not always predictable. They have an amazing family and a great circle of support. Would you please keep them in your prayers during this long journey, that they will continue to get good prenatal results and peace throughout the planning and waiting for Baby Reed's arrival this summer? I have added a link to their blog as well...
A benefit is in the works for Greg and Leslie and will take place on Friday, July 8th from 6-10pm at the Shiloh in Huntertown. I will post more as it gets closer but we are anticipating a silent auction, kids games and activities, Texas Hold-em, giveaways, and dinner, for the evening. Currently we are still looking for donations for the silent auction. If you are interested in donating or helping out the evening of the benefit, please contact me! (carrielynn999@hotmail.com) Thank you!!!
Also, Baby Grace is in need of some prayers right now. She is also battling CDH in the NICU at U of M. She was on a great upward trend and is now hitting many bumps in the "CDH" road. The devestation of this diagnosis prenataly is hard enough, and to go undiagnosed until birth would be unimaginable. Please keep Grace and her family in your prayers....
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4 comments:
Thank you for the prayer request for Grace. I followed the link to your friend's blog and wanted to leave a comment, but I think her comments are disabled.
How great for them though that they have your family to help, surely knowing how your son has thrived has to be of some comfort.
Carrie, i wont be there until around 230. I hope we can meet! Good luck to Noah at his appt!
Hi
My name is Jenna and I came across your blog. Noah is an amazing, courageous, strong and determined fighter. he is a brave warrior, smilen champ and an inspirational hero. I was born with a rare life threatening disease, and love it when people sign my guestbook. I will be keeping Grace, and also your friends, in my thoughts and prayers. www.miraclechamp.webs.com
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