Thursday, August 20, 2009

Holding....

So far so good.....the g-tube is holding over for now. Noah is tolerating it far better than we could have expected. We have even gone up on calories and volume and he is tolerating the formula in his stomach like a champ. We met with the pediatric surgeon in Ft Wayne Wayne the other day to follow up and get some ideas. They agreed that his site still looks pretty bad and the Dr did a quick silver nitrate treatment and was able to remove alot of the goo that was down in the site. We have scheduled a g-j tube replacement for Sept 2nd. This will allow him time to heal from last weeks trauma. We have learned that Kimberly Clark, the manufacturer of the mic-key g-j button is having recalls due to faulty baloons, which explains why this one broke. God willing, if he continues to tolerate the formula into his stomach from now until then, we will cancel the procedure all together. I am trying to be optimistic and realistic at the same time. I don't want to put to much on him especially with the feeding clinic just around the corner. We want everything to be working smoothly and have him comfortable so the focus is on eating, and not tube issues. We are headed to Evansville on Sunday and will stay through Monday. We are so excited to see how things work at the clinic and meet the Dr's for his evaluation. I will post all the info when we return!
Zane started 4Th grade last week, it's still hard for me to believe. He is into his second week of practice for tackle football and really seems to love it. His first game isn't until the middle of September. Right now he is still trying to decide which position he wants to play. It was hard to see him in his uniform with pads and helmet on for the first time...I am not sure when it happened, but he grew up when I wasn't looking!! He will be 10 in just over a month!
Elliot is doing fab! Sometimes I think I could just sit and watch him grow, it seems to be happening so fast! He is starting to sit up unassisted and getting up on his hands and knees in the crawling position. I would think in the next few weeks, he will be fully mobile! He is such a happy, smiley baby!

7 comments:

Jen said...

What a crazy, frustrating time you guys are having w/ Noah's g-tube! I'm thinking of you and sending good vibes your way!!

Jen

Jaime's World said...

Here's hoping that the g-tube works so well that you can cancel the g-j procedure in Sept! Fingers crossed!
:-)

Sheryl

Anonymous said...

Prayers and fingers crossed.

Jeff Handley said...

Thanks as always for the updates... so glad to hear that Noah is doing well with his button.

We love you guys,
Jeff

bikurgurl said...

I'm happy to hear that Noah's tube issues *may* hold steady until you can get him to the feeding clinic. It would be really good news if he didn't have to go through another surgery!

And mom and I couldn't believe how big Zane looked in his uniform! He's is on the threshold of becoming a man! Where does the time go?

It's exciting to hear that Elliot has been growing and changing. The first year is always full of big changes, and I'm so glad you are getting to see so many of them!! You know me, I reccomend pictures like crazy ;)

Thanks for always candidly sharing your life with us. We love you and wish you luck in the coming weeks :)

Kelly

Weylin and Tori said...

Wow! That is wonderful that Noah is handling the g-feeds so well! Hooray! Hope things continue to go this well so Noah doesn't have to head to the OR again. I am excited to hear how the consult goes with the feeding clinic!

Love,
Tori Douglas

Seth CDH survivor said...

glad to hear things are going good